Anne - you've got it spot on - pace yourself!! I do admit, however, to never having got used to this and tend to still go at things like a bull in a china shop when I am well and then spend a few days in bed recovering! Fatigue is, sadly, one of the things meds don't seem to completely cure, but I know that pacing does work wonders - why don't I do it, I wonder?!

Hi Annie, I know just where you are coming from! I think apart from the tiredness, pain etc etc that we get with this horrible disease, packing yourself is the hardest thing to conquer!! Like yourself, I have had days when I feel good (following a steroid infusion) and think Im cured and they've got it wrong!! It comes back and bites you in the bum though soon enough!!!

My rhuemmy although ok sort of gave me the impression that once the tablets ie mx. hydroxy etc kick in then everything will be hunky dory. My rhummy nurse advised me that I will still have to take painkillers regularly and to keep up with them regularly as its too late when the pain gets unbearable!!

Its all very confusing and alien I think, to go from being able to be on the go all day to having to pace and feel lazy when things around you need doing or having to ask for help. My husband Kev says Im too much of a control freak (in a nice way he says!) when it comes to the housework etc!!

Anyway, hope all goes well! Sit down and have a good rest!!

Heatherxxxx